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Posted: 12.11.09 @ 12 a.m.
Woman With Rare Disorder Benefits From Celebration

 

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After several visits to specialists and surgeries, Minister Virgie Lindsey finally found the cause of her headaches and eye pain. She was suffering from hyperosmia, a rare neurological condition causing an extremely heightened sense of smell.

Photo Courtes of NNPA.

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DALLAS (NNPA) - There are fragrances and odors that for some people can be overwhelming enough to cause nausea, sneezing or sometimes, even mild headaches. But for Minister Virgie Lindsey, many scents are overwhelming, often causing intense headaches and eye pain. She suffers from a rare condition known as hyperosmia, an extremely heightened sense of smell.

Before 1999, Lindsey did not seem to have this disorder. But, by the end of the year, she began to notice a change.

“At the end of 1999, I was getting strong senses of smell,” said Lindsey. Scents such as coffee and perfume were suddenly too strong. “It would be overwhelming and just take my breath away.”

As time passed, her sense of smell grew stronger and the symptoms became more intense. She began to avoid many places because the scents would be too strong. The disorder affected every aspect of her life. Even having people in her home presented a challenge, after a while. She said that even mild odors such as cigarette smoke on people and sweat, especially on children after they had been playing, were enough to trigger symptoms. It could even be odors that most people don’t notice, such as a woman on her menstrual cycle.

Instead of telling people that these odors caused her intense pain, Lindsey tried covering them. She began to spray air fresheners, light scented candles and sprinkle odor neutralizers on the carpet in order to cover up the odors and maybe prevent her severe symptoms. She went as far as taking several daily baths to keep her own body free of scents. Eventually, she was taking up to 10 a day.

However, she overused the deodorizers until arsenic began to build up in her system and she had to discontinue using them. The excess bathing was damaging to her skin. But, in a desperate attempt to prevent her symptoms, it had become a compulsion and she prayed that God would help her stop the repetitive bathing. After regaining a normal bathing schedule, she had to find other ways to live with her condition.

Lindsey sought medical attention for the disorder and received various unsuccessful treatments.

“It started with my tonsils,” Lindsey explained that her doctor performed a tonsillectomy, hoping the surgery would be the cure. But when it didn’t work, she underwent another surgery. “They took all my teeth in the back that had mercury, thinking that I had mercury poisoning.”

Several tests and treatments later, Lindsey was sent to the Texas Neurological Institute. She remembers praying that there would be no more surgeries. During her visit, the specialist spoke the words she prayed for, “I think I know what it is.”

It was then that Lindsey received the diagnosis of hyperosmia, a neurological disorder. The specialist told her that her condition was the most severe case that she had seen. And the recommended treatment, she was told, was yet another surgery. Reassured by her new physician’s confidence in the diagnosis, Lindsey agreed to the surgery.

Yet, however positive her physician was, the diagnosis is surrounded by a bit of controversy. As with most rare disorders, some of the country’s leading medical researchers don’t agree on what it is and most certainly, how to treat it.

In various clinical trials and research documentation, it is described as a symptom of other diseases that affect the brain or nasal cavity. But the disorder is also present in mental illnesses. However, some experts aren’t convinced that it’s present as a physical disorder, alone.

Still, Lindsey feels that her prayers have been answered and the surgery will relieve her symptoms. The procedure will burn the olfactory bulbs in the brain, eliminating the sense of smell. It will also remove the sense of taste, since the two are connected.

“I’m praying that God will work a miracle,” said Lindsey. “I won’t be able to taste or smell. But it’s not like I’ve never been able to. It’s overwhelming now, so that’s totally fine, if it means being well.”

As with all brain surgeries, the procedure will be costly.

After receiving e-mails from Dr. Angela S. King, founder of Women Praying for Christ Ministries, Inc., she replied, asking how King knew her. Lindsey soon recalled listening to the ministry’s talk shows on BlogTalkRadio.com and decided to call King. During the phone call, Lindsey revealed her condition, the failed treatments and the new diagnosis. They discussed the surgery and the lack of funds.

King prayed for her over the phone. Before they hung up, she offered to do a concert to raise money for the surgery. At the next WPFCM board meeting, King discussed the benefit concert with the members and the plans were soon put into action. The concert will be part of the ministry’s annual Christmas Love Through Giving charity event.

Lindsey also talked to King about asking JAVEN, a gospel-recording artist, to be the featured artist during the benefit. Lindsey found Javen Campbell, known as JAVEN, on the talk show Web site, as well. With his fourth national CD release, called Keeping the Faith, Lindsey believed that the performer with a supporting roll in the 2010 film, Preacher’s Kid, would be a great asset to the benefit.

JAVEN agreed to donate his talent to the concert.

“I’m always trying to be a part of something bigger than who I am,” said JAVEN.
He says that he hopes the ministry will be able to raise enough money to help Lindsey. But the concert will also be a time to be renewed and refreshed.

However, JAVEN cancelled his appearance on Wednesday morning.

King anticipated the Dec. 5 concert to be a great opportunity to help those in need and bring people closer to God. She and her ministry will feature local artists, who had already agree to participate, including: Carama, a hip-hop gospel artist; Margrette Cooper, an inspirational gospel jazz artist; and Michael Guinn, a national spoken-word artist.

“I know that souls are going to be delivered. When the adversary fights with you like that,” said King, describing the challenges that the ministry has faced in promoting the event. “… You know souls are going to be delivered. Somebody’s going to be set free. It’s in the atmosphere, they’re going to be able to let go and let God.”

The concert was held at Open Bible Fellowship Church. It also benefitted the North Texas Food Bank. Guests are asked to bring canned foods. Donations for Lindsey’s surgery will be taken during the concert. Donations can also be made at http://www.wpfcm.org or e-mail info@womenpraying forchrist.org for more information.

This story comes special to NNPA from the Dallas Examiner.

 
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